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It's hard to explain to someone who has no idea of the daily struggles you face. Feeling pain, feeling unwell, feeling awful on the inside whilst looking perfectly fine on the outside. Putting on a brave face for everyone. Please share this on your status if you, or someone close to you, has an invisible illness. There are many forms - Chron's, PTSD, Anxiety, Depression, Diabetes, Lupus, Fybromyalgia, MS, ME, Arthritis, Cancer, Heart Disease, Epilepsy, Autism, Alzheimers and the many other types of invisible illness coped with daily. Never Judge What You Don't Understand |
Sunday, January 13, 2019
Living with an invisible illness.
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I have had Crohn's Disease for 35+ years and although I struggled through 8 operations and many, many hospital stays, I managed to bring up 3 happy children and hold a teaching post for almost 20 years. My nickname was always Mrs Fine, because when people asked how I was I'd reply "I'm fine".
This is a wee message to those with invisible illnesses who struggle on and put a smile and a brave face on things. Don't be too strong and too brave and never be afraid to ask for help. No-one likes a moaner, but through my Crohn's and having Epilepsy, my health has deteriorated very much over the years into anxiety, depression and Crohn's related complications like a stoma and short bowel syndrome.
Because I always coped with everything and never asked for help I was left to get on with things until I became really ill and collapsed. Everyone was shocked and asked me why I hadn't asked for help. I don't know if it is pride, or not wanting to be a burden, but when you're used to being Mrs Fine, it's hard not to be. So, to all the Mr and Mrs Fines out there, don't be afraid to let family and friends know when you're struggling. They will actually be glad to be of assistance now and again. There are invisible illnesses and not everyone understands, but those of us with these illnesses must know when to reach out and admit when things are getting too much to cope with. There are kind folk around who do understand.
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