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It's hard to explain to someone who has no idea of the daily struggles you face. Feeling pain, feeling unwell, feeling awful on the inside whilst looking perfectly fine on the outside. Putting on a brave face for everyone. Please share this on your status if you, or someone close to you, has an invisible illness. There are many forms - Chron's, PTSD, Anxiety, Depression, Diabetes, Lupus, Fybromyalgia, MS, ME, Arthritis, Cancer, Heart Disease, Epilepsy, Autism, Alzheimers and the many other types of invisible illness coped with daily. Never Judge What You Don't Understand |
Friday, May 1, 2015
It's hard living with an invisible illness.
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3 comments:
Having dealt with fibromyalgia for 22 years, I totally agree that it is very, very hard to live with an "invisible" illness. Some days I can "fake it" and carry on as though I have nothing in the world to worry about. Other days I cannot even get out of bed. Of all my friends, only one understands what I am dealing with, and that is because she, too, suffers with fibromyalgia.
I know exactly what living with an invisible illness is like. I have lived with narcolepsy, depression, ADD, and fibromyalgia for many years now and most of the drs I've seen don't even understand or care enough to try to see the quality of life we live with each and every day. When I was first diagnosticed with narcolepsy I had the greatest Dr. Who did understand and did everything in his power to help me and for the first time in my life I felt "normal".after a few years he died and it's been a living hell ever since. I don't have a social life, I've had two fAiled marriages and I don't have the energy ,attention span, or even the hope of people understanding me any more. Quite frankly, I can't explain myself any more. ..I'm worn completely out from years of doing just that. And most dr.s I've seen lately are businessmen (and/or)business people, not Dr.s that care about you or me .it's all about the money, sadly. I know now what it means in the Bible where it says "woe unto dr.s in the last days ".
I have suffered from depression because of my leg amputation and fibromyalgia. Along with these I also have PAD, arthritis and phantom pains. No one knows what it is like unless they have it also. trying to explain it to the unknown people is exhausting, so I don't anymore. I try to put on a happy face and go on. Most of the time it is hard to do just that. I feel sympathy for those out there that suffer from invisible illnesses but on the other hand I also know that God is the only one that can get me through it. Just have faith when it gets unbearable and remember that God is beside you all the time.
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